Hereditary transthyretin amyloidosis

The PBS subsidises patisiran for patients with hereditary transthyretin amyloidosis.

Please note: You’ll get an immediate assessment when you request PBS authorities online.

Patient eligibility

The Pharmaceutical Benefits Scheme (PBS) subsidises treatment with patisiran under the National Health Act 1953, section 100 for adult patients with hereditary transthyretin amyloidosis.

Patients must be eligible for the PBS and meet the relevant restriction criteria.

The Schedule of Pharmaceutical Benefits on the PBS website outlines the restrictions for prescribing patisiran.

Section 100 arrangements

patisiran

This item is only PBS-subsidised for non-admitted patients, day admitted patients, or patients on discharge who are attending:

  • an approved private hospital
  • a public hospital.

This item isn’t PBS-subsidised for public hospital in-patients. You must include the hospital name and provider number on the authority application form.

Treatment specifics

To be eligible for initial PBS-subsidised treatment with patisiran, patients must be treated by, or in consultation with, a consultant with experience in the management of amyloid disorders.

Authority applications

Applying for initial treatment

Applications for initial authority approval to prescribe PBS-subsidised patisiran to treat hereditary transthyretin amyloidosis can be made either in:

All written applications must include:

Applying for initial grandfather treatment

Applications for initial grandfather authority approval to prescribe PBS-subsidised patisiran to treat hereditary transthyretin amyloidosis can be made either in:

All written applications must include:

Applying for continuing treatment

Applications for continuing authority approval to prescribe PBS-subsidised patisiran to treat hereditary transthyretin amyloidosis can be made either in:

All written applications must include:

More information

Call the PBS Complex Drugs Programs enquiry line for more information.

Page last updated: 1 August 2024.
QC 74411